Hawaii Chapter - NBDF
Phone 808-284-7417

Event Calendar

You'll always know what’s going on with our organization.

Just bookmark this page and check back often for the latest programs and events.


Medexus- Let’s Chat! Advocating for Women and Girls with Bleeding Disorders

Wednesday, April 2, 2025
6:30 pm HST7:30 pm HST
TBA

Join lifelong advocates Kirstin Drye and Michelle Stielper for an engaging discussion about raising awareness and advocating for women and girls with bleeding disorders—especially among those unfamiliar with these conditions. Living with hemophilia B, Kirstin and Michelle understand the unique challenges women face in obtaining a diagnosis and accessing proper treatment.

This session will cover essential facts, debunk common myths, and offer practical tips for talking about your bleeding disorders with others outside the community. Whether you're new to the topic or have your own questions and stories to share, this is an opportunity to learn how to effectively advocate and educate others.

Together, let’s spread awareness and build a community that supports women and girls with bleeding disorders.

Takeda Keep Painting Your Story Ed Dinner

Friday, April 11, 2025
6:00 pm HST7:00 pm HST
500 Ala Moana Blvd
Ste 6C
Honolulu , HI 96813
US

Join us for an interactive program to help you define your goals and create a picture of where you want to go next.
Discover more about hemophilia A and becoming the artist of your own journey.
This program includes information about ADVATE® and ADYNOVATE® treatment options presented by a
Takeda Community Education Specialist (CES).

Ohana Education Weekend

Saturday, April 12, 2025Sunday, April 13, 2025
O`ahu, HI

One of the Hawai`I Chapter’s foundational events, Ohana Education Weekend is an opportunity for community members from all islands to come together to learn practical, hands-on information about their specific bleeding disorders. This includes new developments pertaining to treatment and research, as well as product updates. This weekend is a carefully-constructed blend of learning activities and social activities, and is one of the few times throughout the year when residents of all islands are together in person.

LAST DAY TO REGISTER IS MARCH 28!

Sanofi- Altuvio Game Show Ed Dinner

Saturday, April 12, 2025
6:30 pm HST8:30 pm HST
Romer Waikiki Ambassador Little Sister Conference Room

Koko Ohana Family Camp

Friday, June 20, 2025Sunday, June 22, 2025

More details coming soon!

NBDF Bleeding Disorders Conference

Thursday, August 21, 2025Saturday, August 23, 2025
Denver, CO

More details soon!

Mana Wahine

Saturday, September 13, 2025Sunday, September 14, 2025

Details coming soon!

December Voices

Friday, December 5, 2025Sunday, December 7, 2025

Details soon!

Hawaii Unite Walk

Sunday, December 7, 2025

Registration will be open soon!

Resource Links

Hawaii Chapter - NBDF
75-5660 Kopiko Street, Suite C7 #294
Kailua-Kona, HI 96740
Phone 808-284-7417

© National Bleeding Disorders Foundation 2025

Crafted by Firespring