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Medexus- Let’s Chat! Advocating for Women and Girls with Bleeding Disorders
Join lifelong advocates Kirstin Drye and Michelle Stielper for an engaging discussion about raising awareness and advocating for women and girls with bleeding disorders—especially among those unfamiliar with these conditions. Living with hemophilia B, Kirstin and Michelle understand the unique challenges women face in obtaining a diagnosis and accessing proper treatment.
This session will cover essential facts, debunk common myths, and offer practical tips for talking about your bleeding disorders with others outside the community. Whether you're new to the topic or have your own questions and stories to share, this is an opportunity to learn how to effectively advocate and educate others.
Together, let’s spread awareness and build a community that supports women and girls with bleeding disorders.
Takeda Keep Painting Your Story Ed Dinner

Join us for an interactive program to help you define your goals and create a picture of where you want to go next.
Discover more about hemophilia A and becoming the artist of your own journey.
This program includes information about ADVATE® and ADYNOVATE® treatment options presented by a
Takeda Community Education Specialist (CES).
Ohana Education Weekend

One of the Hawai`I Chapter’s foundational events, Ohana Education Weekend is an opportunity for community members from all islands to come together to learn practical, hands-on information about their specific bleeding disorders. This includes new developments pertaining to treatment and research, as well as product updates. This weekend is a carefully-constructed blend of learning activities and social activities, and is one of the few times throughout the year when residents of all islands are together in person.
LAST DAY TO REGISTER IS MARCH 28!
Sanofi- Altuvio Game Show Ed Dinner
Koko Ohana Family Camp

More details coming soon!
NBDF Bleeding Disorders Conference

More details soon!
Mana Wahine

Details coming soon!
December Voices

Details soon!
Hawaii Unite Walk

Registration will be open soon!