Our Mission
The National Bleeding Disorders Foundation (NBDF) Hawaii Chapter is dedicated to finding cures for inheritable blood disorders and addressing and preventing complications of these disorders through research, education, and advocacy enabling people and families to thrive.
Our Mission ... In Action
-
Giving you education & support for you and your family is our top priority. Our programs will help you connect with others, give you important information on care, and gain support.
-
We fight to protect access to quality healthcare and treatments we need to live healthy lives, but we can't do it without your voice. Discover how you and your family can make a big difference by joining our advocacy efforts.
-
We provide year-round events and fundraisers to spread awareness, educate and generate crucial resources in support of our mission. We hope to see you at our next event!
News Articles
The National Bleeding Disorders Foundation (NBDF) announced the official creation of Guam Chapter of the National Bleeding Disorders Foundation.
Advocacy efforts led by the National Bleeding Disorders Foundation (NBDF), in collaboration with the Glanzmann’s Research Foundation and the CHES Foundation, have resulted in a dedicated ICD-10-CM code for Glanzmann thrombasthenia, a rare inherited platelet disorder. The new code, D69.11, will help clinicians, researchers, insurance companies, and public health systems identify Glanzmann thrombasthenia more accurately and better understand the needs of people living with the disorder.
The National Bleeding Disorders Foundation (NBDF) has announced the 2026 recipients of its Judith Graham Pool (JGP) Fellowships. This year's awardees are investigating next-generation hemophilia A gene therapy and hereditary hemorrhagic telangiectasia (HHT), a rare inherited bleeding disorder caused by abnormal blood vessel development. The fellowships fund early-career researchers investigating the causes and treatment of bleeding disorders through basic science and pre-clinical research.
Five years ago, the National Bleeding Disorders Foundation (NBDF) set an ambitious goal: to transform how bleeding disorders research is conducted by ensuring patient voices and experiences are included in every phase, from study design and recruitment to outcomes and implementation.
