Our Mission
The National Bleeding Disorders Foundation (NBDF) Hawaii Chapter is dedicated to finding cures for inheritable blood disorders and addressing and preventing complications of these disorders through research, education, and advocacy enabling people and families to thrive.
Our Mission ... In Action
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Giving you education & support for you and your family is our top priority. Our programs will help you connect with others, give you important information on care, and gain support.
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We fight to protect access to quality healthcare and treatments we need to live healthy lives, but we can't do it without your voice. Discover how you and your family can make a big difference by joining our advocacy efforts.
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We provide year-round events and fundraisers to spread awareness, educate and generate crucial resources in support of our mission. We hope to see you at our next event!
News Articles
In a May 27th letter to the hemophilia community, it was confirmed that Spark Therapeutics has been fully integrated into the Roche Group. Spark first became a member of the Roche Group in 2019 with the aim of continuing to advance potential gene therapies for hemophilia and many other genetic diseases.
Keri Norris, PhD, JM, MPH, MCHES, Senior Vice President, Health Access and Strategic Innovation, of the National Bleeding Disorders Foundation is a Fierce DEI Award Finalist in the Leadership in Health Equity Category
Dr. Norris has been recognized for her transformative work advancing health access in the inheritable blood and bleeding disorders community.
Because May is Mental Health Awareness Month, the Neil Frick Resource Center (NFRC) is dedicating its most recent Resource Round Up (formerly HANDI Highlights) to supporting mental well-being. This edition approaches this vital topic from a variety of perspectives, with information delivered through multiple formats, including videos, articles, referral resources, and podcasts.