Hawaii Chapter - NBDF
Phone 808-284-7417

Our Mission

The National Bleeding Disorders Foundation (NBDF) Hawaii Chapter is dedicated to finding cures for inheritable blood disorders and addressing and preventing complications of these disorders through research, education, and advocacy enabling people and families to thrive.  

News Articles

While it is generally understood that the social determinants of health (SDOH) are significant factors contributing to an individual’s overall health, research specific to SDOH and its impact upon the bleeding disorders community has been rather limited. Authors of a newly published paper sought to address this knowledge gap by conducting a pilot study on SDOH in bleeding disorders, and gain insight on how these factors pose challenges among underserved groups in the U.S. 

With the fall scholastic season now in full swing, we thought it would be a great time to share a few back-to-school resources to support students, families, and school personnel. This edition of the Resource Roundup features articles, educational videos and fact sheets, all of which speak to both school-based topics and bleeding disorders.

Five people who are inspired by the bleeding disorders community are lacing up for an immense physical challenge: running the TCS New York City Marathon on November 2, 2025. They’ll be running across the Verrazano-Narrows Bridge, through the streets of Brooklyn and Queens, and down 5th Avenue in Manhattan – and each step will help NBDF’s mission of helping people and families living with bleeding disorders to thrive.

Decades of advocacy spearheaded by the World Federation of Hemophilia (WFH) have resulted in a victory for the global bleeding disorders community. The World Health Organization (WHO) Model List of Essential Medicines (EML) has been updated to include safer and more effective medicines for the treatment of bleeding disorders. 

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Resource Links

Hawaii Chapter - NBDF
75-5660 Kopiko Street, Suite C7 #294
Kailua-Kona, HI 96740
Phone 808-284-7417

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